The nightmare I’m having every night

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I’ve been having nightmares every night for the past two weeks. While I’m in a dead sleep I’ll sit up in bed, put my feet on the floor, and sit there while the nightmare plays out.

In the nightmare I’m always playing outside with my son, and Evangeline runs by, sometimes she’s running into traffic, sometimes towards the edge of a cliff or climbing over the railing of my balcony. And I lunge for her, but I always miss. And I wake up because I’m lunging across my bed, or jumping forward head first into my dresser, or I just feel like I’m catching myself just before falling off a high roof.

Then I wake up, startled and groggy, and apologize to my girlfriend if I’ve woken her up because I fell on her. Sometimes I’m convinced I had been screaming, but my girlfriend never hears anything. Then I’ll lay down and fall back to sleep.

My girlfriend will, sometimes several times a night, wake up to find me sitting on the edge of the bed, asleep. And she’ll try to pull me back down. Sometimes I lay down, sometimes I can’t. It depends where I am in the nightmare. Because sometimes I’m playing with our son, and everything is fine, and sometimes I’m trying to save Evangeline and, for some fucking reason, I have to be sitting still on the edge of the bed to do it.

That’s it. I’m still taking the pills, I’m still taking the slow-release insulin at night, but I rarely take the quick acting stuff with my meals. Mostly because I’m not eating meals, I’ve reverted back to waiting until I’m running on empty before stopping for a snack.

I’ve kept my girlfriend, her oldest son and our son here with me since Evangeline died. I think, mostly, so we could all grieve together. Or be each others security blanket. But, with the four of us in my apartment, it also allows me the excuse not to grieve. If that makes sense.

Basically, I need to write to get things straight in my brain. I can’t write if there are people around. The longer people are around, the less I can write, the less I grieve, the more often I have nightmares and wake up because I just dove face first into my dresser trying to save a ghost.

Tonight (Saturday) my girlfriend’s oldest son was acting out (a little) so my girlfriend took him back to her place. So tonight it’s just me and Victor, and he’s sleeping soundly.

But still, if I’m going to get these nightmares dealt with, I think I’m going to need a few days and nights to myself.

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Tragically Hip, “Nautical Disaster”, Day For Night (1994)

I had this dream where I relished the fray
And the screaming filled my head all day
It was as though I’d been spit here
Settled in, into the pocket
Of a lighthouse on some rocky socket
Off the coast of France, dear
One afternoon four thousand men died in the water here
And five hundred more were thrashing madly
As parasites might in your blood
Now I was in a lifeboat designed for ten and ten only
Anything that systematic would get you hated
It’s not a deal nor a test nor a love of something fated
The selection was quick, the crew was picked in order
And those left in the water
Got kicked off our pant leg
And we headed for home
Then the dream ends when the phone rings
“You doing all right?”
He said, “It’s out there most days and nights
But only a fool would complain”
Anyway, Susan, if you like
Our conversation is as faint a sound in my memory
As those fingernails scratching on my hull

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Pregnancy | Tagged , | 7 Comments

What happened the week after my daughter died

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First, thanks to everyone who left a comment here, or sent me an email. It helped to know there were people out there who understood what was going on, and how I was feeling.

Because, honestly, there really wasn’t much of that going on offline.

My girlfriend and I lost our daughter due to complications with her delivery on Friday, April 6. My girlfriend’s water had broken a week earlier, and we were just hoping to get the baby to 24-weeks so her lungs would have a chance to develop. Unfortunately there was an infection, and the doctors were forced to induce just a day before the 23-week point.

That morning, in fact an hour before delivery, the baby’s heart rate was normal and she was still kicking. But she was just too small, and she died during delivery.

We were, and still are, devastated. We had named her Evangeline Rose.

I arrived at the hospital just after the delivery. The first person I told was my step-father, who had given me a ride to the hospital. He shook my hand as tears welled up in his eyes. When he was ready to leave he grabbed my shoulder and told me he was deeply sorry for my loss.

That was the only natural, and proper, reaction from either my or my girlfriends family. For the rest of the week it was insults, disrespect, silence and making sure we knew the entire process was an inconvenience to the people around us.

Because my girlfriend was in shock for most of the weekend after Evangeline died, I made most of the phone calls. I called her parents, to let them know we were home. Her mother answered and pretended to not know what was going on, I asked her to have her husband give me a call when he had a chance, she said “whatever” and hung up.

The next day we arrived at my girlfriends parents’ home to pick up her son, who had been staying with them for a few days. My girlfriend wanted to stay in the car, so I got out and rang the bell. A few minutes later her mother opened the door and said “what?”.

I told her I was there to pick up the kid. She said “oh.”, then closed the door. A few more minutes later and she opened the door again, pushed her grandson out, her husband walked through the door, dropped the kids bags at my feet, turned around and walked back in.

Then she closed the door again.

I walked the boy to the car. My girlfriend, who watched the whole thing, said “lets just go”. I said “fuck that” and walked back to the door and knocked.

She opened the door again, and I told her there would be a graveside service on Friday afternoon, if she and her husband wanted to be there.

That’s when she mumbled, as she was closing the door: “I don’t know anything about it, I wasn’t told, nobody told me.”.

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Aha. My girlfriend’s mother was pissed off at her daughter because we hadn’t told her directly about the pregnancy. We decided, as we did with our first child, not to tell anyone until we knew the pregnancy was going to be safe. So, about the third month.

When the time came we told my parents and my girlfriend’s father, as well as my grandfather and a few friends. We couldn’t tell the mother directly because she had fucked off to Manitoba after Christmas to be with her oldest daughter. Plus, she’s a miserable bitch who made my girlfriends life a living hell for thirty-three years.

But she, and her oldest daughter — re: clone — knew because the father told them.

And that’s not even the point, her granddaughter died during her delivery, and the only thing the old fuck could think of was “I can score some points about Diane” using my dead child’s body.

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Later that same night I called my girlfriend’s oldest sister. Her husband answered and seemed genuinely upset. And then the sister got on the phone.

I told her Diane had lost Evangeline during the delivery. “Oh,” her sister said, “she was pregnant? I didn’t know. No one told me.” Which, of course, was absolute bullshit.

I asked if she were sure this was how she wanted to play this. I said “I wanted to make sure you knew, because I didn’t know if your mother would tell you because she’s acting a little odd.”

She replied “you’d think a sister would call a sister about this. Did you just call my mother odd?”

“Her behaviour,” I said, “was a little odd today.”

And then she threatened me. “If you ever call my mother odd again I know where you live, and I will drive down there.”

And then she hung up.

And that was the last contact we had with her parents — Diane’s older brother, and an aunt, were very supportive over the phone — until the day we buried Evangeline.

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Her father showed up at the service. He brought six of his buddies from the local Masonic Lodge with him, stood over to one side, never looked at me or his daughter, then left when the priest was done talking. At no point did he approach us, or my mother, or anyone else.

He just stood there like an ass, and left.

This was a guy who, while his sociopath wife was in another province, would bring my girlfriend baby clothes and baby supplies for Evangeline.

But now he blames us for the loss of our baby… actually, mostly he blames me. He told a friend of mine at the funeral that he had rushed up to be with his daughter. That, when he told me what was going on, I decided to wait.

But he was there for, literally, ten minutes before leaving. He burst into the delivery room, my girlfriend told him to leave because she was naked, and he left… the whole fucking hospital. He went home.

But in his version, he’s the hero dad and I’m the slacker boyfriend, even though I haven’t left my girlfriend alone for two frigging weeks.

And now he’s confused as to why we don’t want him around. The typical routine in that family is to have an outrageously insulting argument then, a few months later, when everything has been forgotten, they get together for tea and pie and everything’s great again.

This time, I pointed out to my girlfriend, there has been no argument. There is only our daughter in a grave and them using her to make the point that you and I are lousy human beings.

I don’t know how to come back from something like this. How to be a family after having the death of your child ignored and trivialized.

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But my mother has some ideas. Including that it’s my fault that Diane’s father is now excluded from our lives, because I haven’t laid out a plan for a reconciliation.

That’s what she told me as she was kicking me out of her home a few days ago. I was telling her pretty much what I’ve laid out here, and I was emotional because I haven’t had time to talk any of this out.

So, as I was talking loudly and getting ready to break down in tears at the bizarreness of it all, she walked to the door, opened it, and told me to leave. She did not want “anything of them”, meaning Diane’s parents — and maybe even Diane — “in my home. Please leave.”

My mother, during the week after Evangeline died, never called either Diane or myself, and never came over. I had to go to her. I practically had to push her to bring some food to Diane.

She was at Evangeline’s service, and even stood in front and read a prayer. She looked after Victor when he got a little rambunctious while the priest was talking, and she stayed afterwards for a few minutes.

But, a few days before, she made sure to tell me she’d have to leave because she had a busy afternoon. Just like, the day we came home from the hospital, she made sure to tell me that she had stuff to do, so giving us a ride would be an inconvenience.

Just like, when we thought she’d be looking after Victor for one more day after Evangeline died, she told us they had friends coming for lunch so we’d have to pick him up early in the morning, or find other arrangements.

My mother has never made a serious attempt to like Diane. It’s almost as though she’s afraid to be around her because she thinks Diane will explode like her family does with each other.

My mother greatly dislikes Diane’s family (but so do I, and so does Diane).

And all week, from when Evangeline died, until the service, and then this week, it really felt like my mother was holding back. Like either we had inconvenienced her by forcing her to possibly deal with Diane’s family (or Diane), or that she just didn’t want any part of what was going on.

When my mother found out my girlfriend was pregnant with our first child, she made it clear she was unimpressed. She did the same thing when I told her about Evangeline.

Maybe I’m a romantic but, to me, when someone faces a situation like this a family is supposed to come together. There’s supposed to be food brought to the people grieving, there’s supposed to be tea made, talks talked, hugs, support.

I never expected Diane’s family to be there for either of us. They’re still convinced I’m Satan because I haven’t married Diane yet. But the manner in which my own family responded to the death of my daughter — my youngest brother and his fiancée couldn’t even be bothered to take an hour off work to be at the funeral, neither could my step-father — has stunned me.

I’ve felt lost since Evangeline died. I feel like there’s a lot of unnecessary bullshit raining down on both my girlfriend and myself. And it’s taking away from the grieving I’m supposed to be doing for my daughter.

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While I was planning the service, someone approached the funeral director and paid for the entire thing. The director, who was fantastic during the whole process, won’t reveal who it was.

It was very generous of whoever it was… but, social services had already agreed to pay for the everything. Because I’m disabled, and my income comes from the Ontario Disability Support Program, and because my girlfriend was on maternity leave, we were eligible for (I think) up to $5,000 to pay for the plot, the digging, the flowers and everything else.

But when social services called the director, and he told them there was an anonymous benefactor, they said “great, good luck” and that was that.

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The last step is to buy a headstone. We’ve planted flowers on Evangeline’s grave, and we plan on planting more soon.

I just feel as though there are a lot of people who owe her an apology.

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, CSG, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Pregnancy | Tagged , | 12 Comments

What happened the day my daughter died

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Everything started to fall apart early Friday morning. Diane’s water broke on Monday, but the doctors believed she and the baby could last to the 24-week mark, when our baby girl’s lungs would be better developed.

But by early Friday morning Diane was in pain and the doctors found evidence of an infection. That meant our baby, Evangeline, just days away from being 23-weeks, had to come out.

So Diane started texting people, starting with me. But I had been up most of the night writing, then up early to feed Victor. I put Victor down for an early nap around 11am, then fell to sleep myself.

I didn’t get the message until 1pm, when her father banged on my door. By that time the doctor had confirmed the infection and was inducing the delivery. If, as he suspected, the infection had spread to the baby she wouldn’t survive. So Evangeline’s best hope was the delivery.

When I finally walked into the delivery room I still believed there was still a chance Evangeline would have made it. That I would see her tiny body in an incubator. I was preparing myself for months in the neonatal critical care unit.

When I walked in a nurse asked who I was, I told her I was the father of the baby. She asked Diane if it was okay if I came in. I looked around the curtain and saw Diane was sitting in the middle of the room on the birthing bed, doubled over so her face was in her knees. She yelled “yes”, and there was pain and exasperation in her voice, and that was when I knew our baby was gone.

I had missed the delivery by fifteen minutes.

Just inside the door was a small work station, and a doctor washing his hands. He turned to me and put his hand out, he gave me his condolences, then explained that Evangeline had died during the delivery. That she was just too small, and had basically been squeezed to death.

But my attention, since I had entered the room, was mostly taken up by a cart next to the wall. On it was a tray, and on the tray were a few stainless steel bowls, and in one of the bowls was a grey and purple mass. Almost a bubble. For the next hour I would be convinced, irrationally, that it was what was left of my daughter.

I went to my girlfriend, rubbed her back and told her I was there. She was angry, for less than a minute, that I hadn’t been there earlier. I looked at her sitting there, her two gowns soaked in fluids, the blanket and matting she was sitting on covered in blood.

I stared at it and wanted to cry. That, I thought, is what’s left of my daughter — just last week I watched you in an ultrasound kick in your mommy’s tummy, and gulp down fluids into your belly. I have an image of your profile on my desktop, I watched you move. I felt you through your mommy’s tummy just the day before.

I knew, from the ultrasounds, she had my lips and her mother’s cheekbones. And now she was in a bowl in the corner of a blood soaked room filled with automatons performing the exact same actions they made nearly every day. Just getting the room ready for ‘next’. When I looked over at the tray someone had placed a green towel over the bowl.

I left to get my girlfriend something to drink. But mostly just to be alone. When I came back the cart had been moved to the hallway. I was convinced it was Evangeline when, of course, it wasn’t. But in that moment I got so angry that my daughter had been left alone, and that I wasn’t doing anything to fix the situation.

It was then, just as I was walking into the delivery room, that I realized what was in the bowl was the placenta.

Immediately I wanted to know where they had taken my daughter, but at the same time I didn’t want to push Diane. I wanted everything to move at a pace she could be comfortable with.

Roughly thirty minutes later, while we were alone, I asked where they had moved the body. And Diane, still in a haze from the pain killers, and still in shock from what had happened, told me that, not only did she not know where Evangeline was, but that it was possible she had been breathing when they removed her from the room.

I left the room and found the doctor and asked him to tell me what actually happened.

One hour before the delivery Evangeline’s heart rate was exactly where it was supposed to be, the ultrasound showed her moving exactly how she was supposed to move. She was healthy, the area around the cerclage wasn’t, so the decision was made to induce.

During the delivery Evangeline struggled and ended up coming through the birth canal bum first. And that’s when she died.

Shortly after I went back into the room the doctor showed up and asked if we wanted an autopsy done. Diane looked at me, I don’t think either of us could take the image of Evangeline’s tiny body being torn up. I told the doctor our daughter had been through enough.

About an hour after the delivery we let the nurse know we were ready to see Evangeline. She brought our baby in, wrapped in the same style of hospital blanket they had wrapped our son in 2.5-years ago. They had dressed her in a pink, wool dress.

They hadn’t finished cleaning her yet, so there was blood on her forehead. She handed Evangeline to my girlfriend first, she was very tentative. Very quiet. The nurse left us alone. We opened the blanket a little, exposing her entire face and her arms.

Evangeline’s right hand looked like it was grasping at something, so Diane put her finger in her hand. I took a picture. It looks like they’re holding hands.

I held my daughter for ten minutes. Maybe longer. I walked to the window so I could see her in the sunlight. I told her she would have been great. I told her I was sorry I couldn’t do more.

She was so small. She had long, slender fingers, her mother’s cheekbones, I think she had my nose, even though they were closed I could tell she had big eyes, she had full lips and her oldest brothers smirk.

She was just too small… another five days and it would have been different.

I stayed in the hospital with Diane that night. I didn’t want to, I really wanted to just go off by myself and grieve. But I stayed because she wanted me to. Originally the doctor wanted Diane to stay until Monday, but early Saturday morning a nurse told Diane she might be able to go home later that day. And that was it.

My step-father drove us home Saturday afternoon. I made sure she was safe and sound in her home before I went home and started to write. I wrote an update on my other blog, and I cried. Afterwards I went to Diane’s and we watched 007’s Casino Royale, and then I came home and slept until Sunday afternoon.

Before we left the nurse gave us a box with Evangeline’s possessions in it. The dress, her hand and foot prints. Some other stuff — I haven’t looked in it yet. There’s also a purple silk butterfly in it, the wingspan is about the width of a coffee cup.

When a woman is on the maternity ward, after losing her baby during childbirth, the nurses tape a butterfly to the door so they know.

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...thanks.

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Posted in Clinical Depression, crazy people with no pants, CSG, Health, Living With Depression, Living With Manic Depression, Mental Health, Ottawa, Pregnancy | Tagged , | 20 Comments

Evangeline died during her delivery on Friday afternoon.

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Posted in CSG, Health | Comments Off on Evangeline died during her delivery on Friday afternoon.

Her water broke.

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My girlfriend is in the hospital, unless something dramatic and horrible happens she’ll be in there at least two weeks, maybe longer.

Her water broke early this (Tuesday) morning, she’s only twenty-two weeks into the pregnancy. The doctors say there’s still enough fluids inside the womb that they have hope everybody involved will stay healthy until the twenty-four to twenty-six weeks point. But not much longer than that.

The baby is still moving, still gulping in the amniotic fluids, still kicking.

I can’t get up to see her until Thursday, but my step-father stopped in to see her tonight after work, and brought her magazines, puzzles and fruit.

Her oldest son will be staying with his grandparents (may God have mercy on his soul), and our son will be with me for the foreseeable future.

Just last week the doctors told us the baby was in perfect health, the cerclage was holding up great and there was nothing to worry about. Then Monday night my girlfriend noticed some leakage, so she tore up to Ottawa to have it checked out. They told her everything was fine and sent her home. A few hours later it was apparent nothing was fine, and here we are.

So. This isn’t hopeless, it happens in a surprising number of pregnancies, they just have to make sure there are no contractions. They have her on medications that will, hopefully, speed up the development of the baby’s lungs.

So, this is where we are [link] and this is where we have to get to [link].

This continues to be the most stupid year in history.

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...thanks.

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Posted in Clinical Depression, crazy people with no pants, CSG, Health, Living With Depression, Living With Manic Depression, Mental Health, Pregnancy | Tagged , , | 21 Comments

Still can’t hear but at least I’m not spam anymore

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This has been one of the dumbest years of my life, and it’s only three months old.

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First: it’s too hot. It has basically been fifteen degrees hotter than it’s supposed to be, every day, for the past week. That’s just stupid. It has been spring for two days, tops, but I’m wearing shorts when I’m not even supposed to be thinking about where I stored my sandals for at least another week.

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Second: the Chinese food place in the next town has decided to put a minimum charge of $15 for deliveries to my village. I usually use their kitchen once a month, sometimes twice if I’m feeling particularly self-destructive. For the past eight years my order has been: General Tao’s chicken, with sticky rice and two egg rolls = $12.35 (tonight’s fortune: “Sing and rejoice, fortune is smiling on you.” In bed.). Suddenly, now I’m the weirdo who orders one dish and six egg rolls.

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Third: earlier this week I got into a three day argument with my girlfriend over what our kids should call my mother. Just before my son was born I asked my mom what she wanted to be called. “Granny” was out, for a lot reasons but mostly because that’s what I call my psychotic grandmother.

My mom chose “Bubbie”, which made no sense to us because we’re not Jewish. Actually my girlfriend didn’t know “Bubbie” is Yiddish slang for “grandmother”, but that’s another issue. She just thought it sounded weird. So, for the past 2.5 years, my girlfriend and her oldest son have been referring to my mother as “Nanny [her name]”.

Which, I could tell, drove my mom a little nuts. And why wouldn’t being called “nanny” cause a grandmother to be a little put off? Right? So my mom, while my two-year old son and I were visiting for dinner, told my son to call her “Nano”… I don’t know why, probably because it wasn’t “nanny”. So, by the end of dinner, my son was calling her “Nano”. He really seemed to like the way it sounded.

Which, when I told her, really pissed my girlfriend off. Which got me defensive… “seriously,” I asked, “why shouldn’t my mother be able to pick her own Grandmother Name!?” I was told that apparently there’s a two-year cutoff for naming rights, and my girlfriend used to call her favourite grandmother “Nanny”. So there.

But, until I was five I used to call my grandfather “Grand-papère”. But then he sat me down and said, “kid, I’m too young to be a grandfather. You can call me Bud, or you can call me Spud, but no more Grand-papère”. My step-siblings, who only spoke French when our families came together in 1989, still call him “Patate” (potato). My much younger cousins called him “Omie”, I have no idea why.

And now my girlfriend and her oldest son call him “Big Victor”, because our son is “Little Victor”. At least I didn’t tell my girlfriend she was probably overreacting because of the baby hormones, so we’re still together.

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Fourth: I still can’t hear most of the world. Way back in January I lost most of my hearing to an ear infection — in both ears. I finally started to get it back on the last weekend of February, but then an insane cough brought on by heart medication — to treat the hypertension brought on mostly by the hearing loss — closed my ears up tighter than before.

So… ears close from infection, I get hypertension from hearing loss, hearing comes back, take pills to treat hypertension, start coughing from pills and close ears again. I think that qualifies as dark irony.

My hearing has improved a little over the past couple of days, but I’m still mostly deaf. I’ve been off the heart medications for two weeks, but the cough has come back as of a few days ago, and every time it does there’s a sharp pain in my left ear, and I can feel it close a little. So I don’t know what the fuck is going on.

In other ear news, I’ve been taking Extra Strength Aspirin for the pain caused by the coughing, and to reduce the swelling in my ears. Turns out, heh, there’s a 33% chance that prolonged use of Aspirin can cause hearing loss.

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Fifth: turns out that for the past month one of the most popular Internet spam filters, Akismet, thought my blog was spam. I was spam for a month. Which, when I figured it out, felt weird, and worrisome and stupid, but it was kind of nice to finally have an answer, because for the past month I’ve been leaving comments on other blogs, and in the WordPress support forum, and the comment would just disappear.

Which sucks for everyone else as well because my comments are always brilliant and well worth the read.

I figured everyone just had their moderation features on. Or that I had pissed a few people off, or something. I made a support request, but WordPress has been deluged with more than 8,000 requests and have only ten people fixing things. So I was a low priority ticket.

It took a week, and some testing on my part (thanks Zoom), but I finally narrowed the problem down to my URL. Then support finally told me to check with Akismet directly — WordPress and Akismet are both owned by AutoMATTic. Two hours later and everything was fixed.

Thankfully, I am no longer spam. At this point I really don’t even care how I got put on the Akismet spam list… actually I am kind of curious. And vengeful, actually.

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Three fucking months. That’s how old this year is. Just to recap, last year I broke my foot; gave myself a second-degree burn after being in a two month Lithium overdose thanks to being put on insulin; I slipped and had a partial separation of my shoulder; I had a two month long fight with my mother; had a long and painful eye infection; my computer caught an expensive virus, and; I found out my kidney functions have dropped to 37%.

See… I knew, I knew, that when I hit forty that I would begin to disintegrate. I’ve lived a life where disintegration, at some point, was a given. But I had no idea it would be so fucking fast. I’m barely two years into the forties and I feel lucky my arms are still attached.

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YouTube Alert. If you can’t see it, click here.

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, WordPress | Tagged , | 14 Comments