Then I remembered the answers lay in bagels

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Just a quick post, with some good news… finally: my blood sugar levels are as close to normal as they have been since 2001.

Over the past three days I’ve gotten the numbers down from mid-20’s to eight. I’m so used to seeing high numbers that I’m apprehensive now about taking a reading on the chance the low numbers turn out to be an anomaly. I saw an eight at my last reading, now I’m afraid I’ll do something before the next one and end up back at 25.

It’s all because of diet. And the Metformin and glyburide, but mostly the diet.

I broke my foot a couple of months ago, and waited to have it looked at because I thought the pain was due to diabetes. It wasn’t, and I’m an idiot. At least the orthopaedic surgeon said so. He also told me, because of how long the Type-2 diabetes went untreated (at least ten years), and how high my numbers have been since I was diagnosed three years ago, that I’m a candidate for something called “Charcot Foot”.

Which is basically the polite way of telling me I’m a bruise away from losing my foot.

So, being on disability and not having much money, I approached my mother about helping me improve my diet. I figured it would take a couple of months until I was in a position where I could afford the quality and quantity of food necessary to get the numbers down.

Two months ago my diet was basically cans of brown beans, canned tuna, massive amounts of 1% milk and diet pop, and pasta. I was eating one meal a day, plus a few snacks — like a bowl of Raisin Bran. And not much else. I was basically eating like I was when I was on welfare.

With some help* from my mother I’ve spent the past four days eating whole wheat bagels, fresh fruit, real vegetables, yogurt and fish. It’s awesome.

I receive $50/month from ODSP to spend on a special diabetic diet. It’s next to useless. Rumour has it the amount is going to rise this summer, and if it wasn’t for the broken foot I probably would have waited forever for some help, but getting this stuff under control is a higher priority now.

The diet I’m using now is something I came up with two years ago, and it worked fast back then as well. But I stopped it because it became inconvenient to get the groceries, and the cost was a little too much.

But lately I’ve been looking at the amount ODSP gives me, and thinking I can work this upgrade in food into a workable budget.

…I’ve never been very good at budgeting. It’s a discipline, and something I can learn, but it’s going to take some time. After restocking my freezer and cupboards, I am now completely broke until the end of the month, which is a problem. I’ll have no more fresh food by Tuesday, but I think I can go another ten days or so on what I have, and keep my numbers down.

Those low numbers have made me very happy.

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*My mother and I are no longer speaking. I’ll write about it later, the emails surrounding the reasons why are an incredible insight into our relationship… but, other than that, everything’s great.

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Diabetes, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Poverty | Tagged | 13 Comments

The Ontario Ministry of Community and Social Services hates disabled people

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CAUTION: This post was written after receiving some very bad… incredibly incorrect information from an ODSP worker who was either very new, or very, very drunk. It turns out things weren’t nearly as bad as he made it out to be, but he still managed to waste a year of my life. I’ll update this post soon… today is August 5, 2013.

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I can’t move in with my girlfriend, and our son, because the Ontario Government hates people, especially when one of them is disabled.

I contacted my Ontario Disability Support Program (ODSP) case worker last week to find out, once and for all, what ODSP could do to help support my son. He told me the disability support system is basically rigged against disabled parents.

I called them once before, just a few months after my son was born, and the answer I received from ODSP seemed to come from an insane person. I told the “expert” my girlfriend and I lived in the same building, but in separate apartments. After that he kept repeating “I’ve never heard of such a thing” over and over again.

Eventually I had to hang up on him. This region’s primary industry is creating single mothers, and ODSP guy had never heard of two parents living separately.

I decided to call again because recently the ODSP system changed in two ways, one: two people on ODSP can now live together without their cheques being cut in half, and; two: there are no more specialists at ODSP, so when I call for information the only person I’ll ever have to deal with is my case worker.

I like my case worker — in that he never calls me, so when I found out about the changes, I called to find out if it extended to disabled people living with significant others. Unfortunately, it turns out the system is insane, not just some of the people working in it or using it.

He told me ODSP will give me a $100 bump on my monthly cheque for being a daddy… on condition I have custody of my son.

So, with or without his mother, my son must live with me full time in order for me to afford an extra two weeks of diapers. But legal custody also means the monthly baby bonus would be split in two. If it was just me — if my girlfriend were to lose her mind and give up her parental rights, then I’d get the whole bonus.

Regardless of how much of the baby bonus I would receive, whether it’s half or the full amount, it would then be deducted from my ODSP cheque.

But the bigger problem, if my girlfriend and I were to ever live together, would be ODSP would then deduct half of her net monthly income from my ODSP cheque.

That’s right… according to the Ontario Ministry of Community and Social Services, if I move in with my girlfriend and our son, my ODSP monthly income would drop from $1050 to, roughly, whatever I could raise panhandling.

It would actually be cheaper, or the amount taken out of my cheque would be less, if I were to continue renting my apartment and move in with my girlfriend, then to give it up and tell ODSP I’m moving in with her and our son.

It’s bizarre. ODSP will allow me, someone who has been labelled “permanently disabled” to go out and work at a part time job, as long as my monthly income was less than $500 (give or take). Anything over that and money is deducted from my ODSP income. That kind of makes sense, but the services designed specifically to keep me alive, or support my infant son, are only minimally there.

The ODSP system acknowledges we have a problem beyond our disability, but then it hands us a coupon for a carton of milk to fix our acid burn.

ODSP gives me $50 a month because, as a diabetic, I’m supposed to eat a special, and expensive, diet. So… without the diet, I’m basically just a big sack of nearly dead, but getting there. So… to fix this, the Ontario Ministry of Community and Social Services gives me $50. Which would pay for, roughly, ten days of my doctor-mandated, and prescribed, diet.

“Ah,” says ODSP, “you’ve got diabetes. Well here’s $50 for some apples, see you at the dialysis clinic in five years.”

You have to figure, if they added up the costs of the insulin, dialysis, a kidney transplant, the heart treatments, the amputations, the fake legs, the lost productivity… just add it all up, divide the total cost in two, then just handed us that pile of cash so we could afford a proper diet, and maybe a nice new car, it’d save them 50% of whatever they spend now.

My girlfriend and I want to live together as a family… “ah,” says ODSP, “well, I know you’re both way under the poverty line right now, so all you have to do to live together is cut your income in half.”

It really is bizarre. Someone actually had to decide that if a disabled person moves in with their child and girlfriend, half of their ODSP income should be docked as a penalty. And that, if a disabled person has a kid, they’re not eligible for any support from ODSP, even if the child spends an equal amount of their time in the disabled person’s home.

Depending on whether or not there’s justice in the universe, I assume whoever made those decisions has either died from syphilis, or went on to form their second majority provincial government.

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...thanks.

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Posted in Clinical Depression, crazy people with no pants, CSG, Diabetes, Disability, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, ODSP, Poverty | Tagged , | 15 Comments

How Do I Succeed As A Father If My Examples Always Failed Me Spectacularly

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‘You may give them your love but not your thoughts,
For they have their own thoughts.
You may house their bodies but not their souls,
For their souls dwell in the house of tomorrow,
which you cannot visit, not even in your dreams.
You may strive to be like them,
but seek not to make them like you.
For life goes not backward nor tarries with yesterday.’

“On Children”, ‘The Prophet’ (1923); Kahlil Gilbran

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So if every real-life example you’ve been given of what it means to be a father, of what it takes to be a father, is corrupt, broken and mostly useless, how likely is it you’ll be a good father?

I never knew the father’s of the kids I knew while growing up. My first male school-teacher was in grade five. I only started playing organized sports in high school. Until I was in my mid-teens the major male influences in my life were my grandfather and my mother’s brother.

From the age of eight until my early teens I visited with my grandfather five or six weekends a year, including one or two weeks in the summer on his hobby farm, and a long weekend at Christmas.

My uncle, who has his own ‘issues’ with his mother and father, would occasionally show up at my grandfather’s farm for a weekend while my brother and I were there.

The only other ‘real-world’ examples in my life of fathers, or father-figures, would have been the few boyfriends my mother brought home.

There weren’t many, but there were three major ones… the lawyer, the artist and the mathematician.

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Sometime between 1982 and 1983, when I was twelve or thirteen, my mother became involved with a local lawyer. He really wasn’t much of a factor in my life, except that he was around. I don’t remember him disciplining me, or even being around at dinner. I definitely do not have any lasting mementos from our time together.

I do remember, however, my mother cared very much for him. There was one night when they were arguing, I could hear them from my bedroom, and I heard my mother telling him to “point that somewhere else”. Then I heard her scream out, and him saying something like “it’ll be okay.”

I hurried downstairs, and tentatively walked into the storage shed off the kitchen. I found her bleeding from beside her eye, and him still holding the ski-pole. My mother quickly assured me everything was fine, and that I should go back to bed. We’ve never discussed the incident.

The guy had been waving the ski pole at her, until it finally cut her open.

Not too long afterwards I found out — by eavesdropping on a conversation — he had been promising my mother that he had left his wife to have a relationship with my mother, but after a few months went back to his wife while continuing his relationship with my mother.

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A few years later, around 1985, we moved in with her boyfriend, a locally-based but nationally known artist, in his extremely rural farm house. I remember she was very excited about the move.

He was older than my mother, maybe by fifteen years or more. He had a black belt in judo, he made an excellent living on his art (ceramics), he had no children, and was really uncomfortable around me. He tried though… I suppose. I never liked him. There were three incidents that defined our relationship.

We had a mini-argument where I, being 15-years old-ish, made a smartass remark, and he leapt from the couch to the doorway where I stood, to within inches of my face, in the blink of an eye. I can’t remember what he said, but I was sure he was going to hit me.

The next was me stealing money from him. I went though his filing cabinet, where he kept his orders, and found a bunch of $20 bills stapled to invoices. I might have gotten to $200 before I stopped.

The third was him insisting I cut several (20-ish) cords of wood for him, because he thought I was lazy (even though I spent my summers working on local farms as a minimum wage farmhand). In return he would pay me $200 dollars (unrelated to the money I stole). I worked on it for a few hours a week, after school, using a sledgehammer and wedge. In return I received several lectures from him about how a man could do the job in a few days.

I finally took two days, twelve hours each, and finished the job. I would cut enough to fill his pickup, then drive it to the shed where I’d stack the wood. The final day was dark, and very damp, and when I tossed the final piece on the pile on his truck it slid all the way to the back window, in slow motion, and shattered it.

I walked into his workshop and told him what happened. The only reason he didn’t beat on me was my mother was standing in the room with us. As it was he got very angry, and took a few steps towards me before leaving for a few hours. He used my paycheque to fix the window.

…he also ran over my cat. So that could be the fourth, I guess.

After my mother broke up with him he sent her a letter, part of which I read while she was in the store. He was begging my mother to come back, and thought things could work the second time because he’d pay to send my brother and I to a boarding school.

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The third boyfriend was an honest to God ‘mountain man’. He had a large property way, way back in Quebec’s Laurentian Mountains, and would take walks that could last for days. He was constantly showing up unexpectedly to help his neighbours fix their roof, or build a barn or whatever.

He was also, from what I remember, a math prodigy who graduated from McGill University before he was twenty.

He didn’t spend a lot of time with my brother and I at first, but I do know he and my mother became very close. After less than a year he proposed, and she accepted. That was when we started spending more time at his mountain home.

Which was as boring as dirt, but he was a good man. I have a master mechanic for an uncle, and an engineer for a grandfather, but this was the first man to teach me about engines.

After the proposal he did a lot to make me feel comfortable, and I did start to believe he could be a father to me.

Which is when he died. Seriously, roughly two or three weeks after I felt like I had stepped over a line, and accepted the idea of him as a father, he died from a pulmonary embolism.

I didn’t love him, but I did respect him and was ready for him to be my father.

I was one of his pallbearers.

I’ve always considered his death to be one of the primary… releases of my depression. Everything I had been ignoring started to unravel after he died.

I quit school a few months later, and moved 3,000km from home for eight months. When I came back home I had been drunk for six months. I tried high school again, but it wasn’t working. My mother and brother had moved in with her new boyfriend — they eventually married, and he’s a great guy.

So I became suicidal, quit high school and spent a month in the Ottawa General Hospital psychiatric ward.

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I don’t know what it means to be a father. I get the dictionary definition, I get the Cosby Show cultural references, I even understand that all I really have to do, the bare minimum, is to provide an example by not hurting him, by not hurting myself, and teaching him to not hurt the people around him.

But all of the examples in my life, all of the lessons I’ve been taught, tell me to leave. To not be involved in my son’s life, or to be minimally involved. My father abandoned me when I was three, the next person I accepted as a father died when I was seventeen.

In between was just stupidity.

I spend two or three full days with my son, and I also see him for short periods during a few evenings. In between I feel guilty… partially for not seeing him, but mostly because it’s more comfortable being on my own.

My girlfriend has an older son, he’s five. His father is a fucking joke. He pays no child support, activity-time is daddy plays online poker for four hours while his son sits in a dark room playing video games or watching movies. Visitation is Tuesdays and Thursdays for three hours each, and every second weekend. It’s 50-50 that he shows up.

…my girlfriend’s ex-husband’s father was an alcoholic, and an idiot, and abandoned him for long periods of time.

I look at my son’s older brother, and I think… fuck, you’ve been abandoned by your father, and your grandfather, and you don’t even know it. And in ten years you’ll be as fucked up as the rest of us who grew up without a father, and you’ll be helping to teach my son how to be a human being.

It just keeps rolling along.

But the thing is, I know I can be a father to both my son and to his older brother. At least I want to, occasionally. All I have to do is lean in, commit to the job, put together lists of activities and actually follow through with them. Engage them.

But, the thing is, it just feels like something is missing. And maybe it starts from having no father figure, but also comes from the fourteen-years of the manic depression being untreated, and having a mother who was mostly absent from my childhood, and being so isolated and unable to maintain long term relationships.

All of it, however, is tied up into the giant package of my not understanding what it takes to be a father.

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, Bud, Clinical Depression, crazy people with no pants, Depression, Father, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | Tagged | 10 Comments

My search to find the capital F in father

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‘Your children are not your children.
They are the sons and daughters of Life’s longing for itself.
They come through you but not from you,
And though they are with you yet they belong not to you.’

“On Children”, ‘The Prophet’ (1923); Kahlil Gilbran

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I watched a documentary recently where the subject, a man recovering late in life from years of neglect and childhood abuse from his father, said he wasn’t interested in reconciling with his father… what he was doing, through his recovery, was trying to understand “father”.

My interpretation of what he was saying is that “Father” means more than ‘father’. As he said it, I understood there was a difference, but I’m not sure what, exactly, it is.

What he said made me think about the role “father”, as a concept, has had in my life… so I thought I should write about it for awhile.

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My father was an elementary school English teacher. He was only 18 when he started teaching. There was a shortage of English speaking teachers in the Montreal Catholic School Board, so he was recruited out of college.

When he was twenty-ish he met my 15-year old-ish mother during a charity walk. Three years later they married, less than a year later I was born… on a wintry night, in a hospital in a suburb of Montreal.

Six months later my father deliberately got himself fired from the school. A month after that we were living with his parents near Toronto. The plan was for my father to take over the day-to-day operations of a Youth Hostel.

My father was born in Scotland. He arrived in Canada when he was thirteen. His mother was a mathematician, who worked at developing radar, and then breaking German codes during WW2. His father was a radioman, who served on the HMS Hood, and then a coastal ship… which I don’t know the name of.

My father has three younger brothers. After the war my father became a replacement caregiver for his brothers, as their father travelled around Europe for up to six months at a time, helping to build radar installations.

He also became a replacement husband. There’s a lot he would never talk about, but he did admit to me there was abuse. His mother was a fundamentalist Catholic. So beatings were common. But she also kept him up all night talking to him as though they were a couple.

As a preteen my father would frequently ride away from home on his bike, expecting to never come back.

But he always did, and he always felt shame in doing so.

When his father returned it was always a relief, because my father could revert back to being the son, and the brother.

Most of the work his father did was classified, so he never really explained anything to my father, but during the short stays together they did get along. Absentee fathers are lucky like that. No matter how long they stay away, if the child is young enough, their return is always a celebration.

Basically, while my father still lived in Great Britain, he was abused and neglected. The neglect continued after the family moved to Canada in 1956, when he was thirteen.

When my father refers to my mother, he calls her his “angel”, because when they met he was suicidal. He believes she saved his life. But my father has always been an absentee romantic. An idealist. Someone who, the more time gets between him and a moment, the closer the moment gets to perfection.

Which is common enough in people who have been abused.

Seven months after I was born we moved from Montreal to Southern Ontario to live with his parents. A few months later we moved into a house with my youngest uncle and his best friend.

And that was when we stopped being a family.

My father, when still in Montreal, had his political awakening. French-speaking Quebecois were still serfs. If you spoke only French, you made 97% less than an Anglophone. What the Americans owned, English speaking Quebecers managed. The Catholic Church was still in power. If you were French, you were a “Pepsi: empty from the neck up”. The Quebec Revolution was still in its infancy, but was spreading.

My father marched against American Imperialists. He was also involved in magazine publishing.

So, in our Southern Ontario home, he combined the two, and we became a “Collective” / commune. We became anti-imperialist soldiers who literally sang songs from the Communist Party of Canada (ML) songbook.

At first my father tried working with his father. But that didn’t last a year. A year after that my father gave up on me, and my younger brother, as well.

We became charges of the Collective, while he tried to organize the Revolution.

Seven years later my father bought me a bike, because his multiple affairs had been exposed — including the pregnancy of my mother’s best friend, and he needed proof he could be a good man. The only photos of us together (that I’ve seen) were taken before the Collective, and in the weeks leading up to his forced expulsion from the group he started.

Eventually we escaped my father, we didn’t leave him.

I was eight. When I was fifteen, against the wishes of my mother, I travelled the 400 miles to see him. I spent three days with his parents, and two hours with him. Thirty minutes of that was in his office’s waiting room. The rest was spent in a restaurant.

He told the waitress “this is my son”… that was the first time I heard my father say that. I still cannot adequately describe how it made me feel.

My father was neglected, even abandoned for long periods, by his own father. His mother physically and emotionally abused him. His maternal grandfather was an abusive bully. As a child, my father was turned into a father for his three brothers, including meting out punishments.

The first time he abdicated his responsibilities as a father was when he quit teaching. He still talks about teaching those children as one of the great moments in his life, but when the school asked him to cut his hair, he quit — without consulting with his wife, who had just given birth to me.

Eventually my father abandoned his first two sons soon after we were born, and eight-years later he abandoned his third son before he was born.

My father went on to have two daughters, and did his best to be a father to both of them. But he forgot to tell them about his other three children. When they found out about his past, when they found out he had lied to them for eighteen years, and how he had abandoned us, they stopped being a part of his life.

…he also abused the people in the Collective, all of whom he recruited into the group, and all of whom looked to him as a father figure and leader. In the end it was his abusive behaviour, coupled with his infidelities with some of the women in the group, that forced them to toss him out.

At every opportunity my father, a very intelligent man who also exhibited most of the behaviours of manic depression, seems to have sabotaged every chance he has had to be a father.

He wasn’t alone. Two of his three brothers also have two sets of family’s. His third brother was a Priest, who left the priesthood to have a family as his own. All four brothers were estranged from their father for many years.

Before he died a few years ago, three of the brothers did reconcile with their father — including, at least somewhat, my own father.

Maybe there was just enough time from when they received the abuse, and felt the abandonment, for them all to let those memories and grudges go.

In the end two of the brothers provided for, and have healthy relationships with their children. And two of them, my father and his youngest brother, definitely do not.

I think, while he was raising my sisters, my father tried to be a “father”. And, in a few ways, he succeeded, because my sisters are remarkable women — albeit, mostly because of their equally remarkable mother.

But there’s a fable about a frog agreeing to take a scorpion across a river, but only after the scorpion has promised not to kill the frog because “then we’d both die”. Eventually the scorpion stings the frog, and the frog shouts “hey, WTF?!”, and the scorpion says “sorry dude, it’s who I am.”

Except, in his life, my father is both the frog and the scorpion and he always gets halfway across before killing whatever life he has put together.

Ultimately my father failed as a father, several times over, because he couldn’t separate the abuse done to him by his father* from the role of father.**

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*…his mother was the physical presence in his life, but I think the neglect from his father was ultimately more damaging, because that’s how I’ve felt about my father’s neglect.

*…mostly because he was / remains a narcissist and psychopath. But that’s another post.

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...thanks.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Father, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | Tagged | 3 Comments

Too much and not enough…

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There’s too much to write about at the moment, which means there’s a backlog in my head… which means when I sit down to write about one thing, three other things get in the way.

So, instead of writing about what’s going on, or about my recovery, or my broken foot, I’ve rediscovered the diversionary power of my PS3 and GTA IV.

Some of the things I want to write about:

1. my brother was here for a visit, with his wife and new baby. It was pretty awkward because he thinks I’m doing something wrong by preventing our (abusive and manipulative) grandmother from being near my son.

2. …great, now that’s all I can think about.

3. I saw a documentary recently on NFL running back, Ricky Williams, and his search for himself and some understanding of his role as “father”. It’s called “Run Ricky Run”, and it’s basically his real time recovery from years of abuse and neglect from his father. He turned his back on $30millionUS and spent four years becoming a yoga master, and discovering Hinduism. It was brilliant, and a lot of it made a lot of sense to me.

4. Even though I’ve recovered from most of the direct effects of manic depression, the indirect parts… the behaviours, have become a direct threat to my life through the diabetes. Most likely, because of how long I’ve lived with my blood sugar so high, I will die from diabetes… and what’s preventing me from mending myself, healing myself, is having lived so long with the manic depression without treatment.

…anyway. There are a few others that I can’t remember right now. This is the preview for “Run Ricky Run”…

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YouTube Alert

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I just wanted to basically write something to acknowledge there have been a lot of long pauses between posts on this blog (and my other ones) recently. But it’s mostly because I haven’t been able to concentrate on one specific topic long enough.

I’m still fairly confident this blog (and one of the others) is helping more than hindering my recovery, so it’s still a necessary part of my life… maybe even to my life continuing.

So I’m going to try and limit my distractions over the next few days, and try to spend some time on my own so I can give these issues the time needed to gain some clarity.

Because otherwise they’ll just keep swirling around in my head, causing nothing but damage and confusion.

The short-term plan also includes getting rid of cable… which just sucks my brain dry, so I end up avoiding these issues through culturally induced brain damage.

I guess that’s it for now.

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...thanks.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Diabetes, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | 4 Comments

An update on my foot because I finally took my little piggy’s to the ER

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“I started [blood-glucose] testing again because I’ve had a pain of varying intensity in my right foot for more than a month now. Surprisingly my plan of doing nothing hasn’t worked, and it has only gotten worse. It’s a burning sensation along the right side, but also more than that.
Basically, my foot hurts. And it has me thinking about the possibility of losing a foot, a leg, my life to this disease.”

“Live by the blood glucose meter, die by the blood glucose meter”, Me; February 18, 2011

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“Time won’t save our souls / Time won’t save my soul / I never thought I’d see it coming / I never thought I’d ever know / Nothing seems to take me over / Nothing seems to let me go…”
“Shuffle Your Feet”, Black Rebel Motorcycle Club; ‘Howl’ (2005)

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Turns out foot pain, or, in layman’s terms, the throbbing pain in my foot, has more than one cause. And, funny thing, in order to find that cause it’s almost a necessity to find a medical professional.

Sitting around with your girlfriend, waving randomly at your foot and whimpering is not, it turns out, a recommended diagnostic procedure. Even if it’s done during House.

Tuesday morning I called my family doctor, thinking I could get an emergency appointment. I told the nurse my foot had been throbbing for over a month, and I thought it was because of the diabetes.

She asked what the numbers were, I told her I was averaging in the low-20’s. She told me to get to the Emergency Room immediately. Then she told me my family doctor would see me… in four months. There’s an entire month’s worth of posts about the Canadian medical system in that sentence.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, crazy people with no pants, Diabetes, Health, Living With Depression, Living With Manic Depression, Mental Health, Poverty | 7 Comments