No time left for writing

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I basically have two options: I can look after my son from 5am until 6pm, or I can write, but I definitely cannot do both.

Two months ago my girlfriend found a minimum wage job at one of the local cheese factories. She had spent fourteen months basically immobile through a pregnancy, then the first year of our sons life, and she needed to have a place to spend her day interacting with adults.

So at 5am, five days a week, she drops our son off at my apartment. Most days he and I both sleep for two, maybe three hours — him in my bedroom, me on the couch. Then we spend four or five hours trying to figure out what he wants.

On the nice-weather days we spend the afternoon in the park, or cruising around our village in his little buggy.

The afternoons are great. The mornings are the exact opposite. And from 7pm, when my girlfriend takes our son to her home, until I finally pass out around midnight, I might as well be a zombie.

Caring for my son is exhausting, but really mostly for the non-sleep factors. Caring for him having only had three to five hours of crappy sleep, where I’m waking up every hour on the hour, is turning me into a mindless automaton.

Long story short… I have no time to write now, or for the foreseeable future. My girlfriend is looking for a job with more reasonable hours, but that could take months and inevitably really solve nothing.

So between now and then I’ll mostly be posting photos here. At least that’s the plan. Setting up a schedule that allows me to look after my son, spend time with my girlfriend, eat as well as write is something I’m working on.

I figure posting something, anything, that is simple and quick will give me something to concentrate on that’s not the high pitched screams of a 35-pound raging poo badger who really only wants daddy to pick up a toy said badger just threw across his room.

Without all the hassle of having to maintain a coherent thought through a fog of exhaustion.

…he’s actually a remarkably quiet, thoughtful, mellow and sweet kid. But still, I’m a freaking zombie at the end of the day.

Writing just this much means I’ve now been awake for twenty-two hours. And I’m only up this late, writing, because my girlfriend is taking a day off because she misses hanging out with our son, so I get a diaper free day of sleep.

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The photo is a self-portrait of me in the dentist chair getting a cleaning. She found no cavities, which means I’ve gone almost an entire year without a hole appearing in my face. And my gums are healing as well.

Just another victory for me… quit smoking, quit chewing my nails, quit drinking, getting treatment for the bipolar and diabetes, raising a fantastic kid, and now no cavities. Damn.

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, crazy people with no pants, Father, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Photography, Zombies | Tagged , | 10 Comments

Summertime so avoid going toxic and get your Lithium levels checked

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Summer’s here, so if you’re taking Lithium as part of your recovery from manic depression it’s vital you get a blood test.

Because it’s possible for the Lithium levels in our blood to fluctuate, blood tests are always important when Lithium is part of our recovery regimen. In order to be effective Lithium must be at a specific concentration in our blood.

Too little and we might as well be eating Pop Rocks. Too much, and there’s a risk of toxicity, which at this time of year means heat exhaustion, heat stroke, and eventually a stay in the hospital.

But mostly it makes us irritable and a pain in the ass to be around.

Since dehydration is the largest factor in the fluctuations, heat and especially outdoor activities can seriously screw up the levels. Just a few hours under direct sunlight, at the wrong levels, can make it hard to think, hard to reason and turns the Lithium into something that works against you.

So it’s important to get the test done, then talk to your doctor about adjusting your dose — which generally means lowering it, sometimes for a few months, sometimes just during heat waves.

Getting tested regularly gives your doctor a better understanding of how your body is reacting to the Lithium, but even if you (kind of like me) only get them done occasionally, getting tested seasonally is vital.

End of Public Service Announcement… but it is important we take as much control over our recovery as we can handle, and getting at least a seasonal blood test is in that category.

…we’re on our second 30C+ heat wave here, and I’m definitely a candidate for lowering my dose.

I’m still not sure if it’ll work or not, but I just installed an air conditioner which could be as old as I am. Free is as much as I can afford these days, so at worst I just acquired a new coffee table.

I mostly bought it so my son’s little brain won’t bake when he stays with me. I had it going for two hours earlier, and I think I noticed the temperature drop a little, so there’s hope.

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...thanks.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, crazy people with no pants, Health, Lithium, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | 4 Comments

The safety net my family offered me turned out to be full of holes and then the security blanket caught fire

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We cannot recover from diseases like diabetes or manic depression without help from the people around us.

Without help I was left to the whim of a disease which convinced me day after day, hour after hour, that I was worthless, and the best option I had was to stick a knife in my wrist and hope it went deep enough.

The only way I’ve been able to fight back against the manic depression was the constant help I’ve received from a psychiatrist who specializes in manic depression, and finding the will and clarity to remember to take the medications. The help I received from family was minimal, but they did supply me with rides to my appointments, as well as a $200 per month allowance to supplement my disability payment.

In my recovery from diabetes, on the other hand, I’ve been left on my own. And maybe that’s my fault, sometimes I don’t make it clear to the people I rely on how important their involvement in my recovery is. But, at the same time, most of the people around me don’t push. If they cancel a ride, I’ll shrug it off, but they’ll be more likely to cancel the next one as well.

There’s also the lack of a firm schedule. I see my psychiatrist every two weeks, it can take three to four months to see my family doctor. If I managed to get through to his office tomorrow, for example, my appointment would be scheduled for mid to late September. People forget.

Basically, my family doctor is barely useful to me. I last saw him almost a year ago and we agreed, if my blood sugar results remained high, I would be put on insulin as well as the Metformin and Glyburide. This past January I called his office and made an appointment for May, of 2011. I missed it, and that’s my fault. But there was no courtesy call to remind me.

I did manage to reschedule my appointment for this Wednesday morning, but only because I explained to his assistant I was diabetic, my numbers are extremely high, I had broken my foot, and both the ER doctor and orthopaedic surgeon told me insulin would be a really, really good idea.

The surgeon also told me I was a prime candidate for something called “Charcot foot”, which is basically the last step in the devolution of a diabetic before we lose our feet.

Two months ago I asked my family for the same $200 per month allowance they had given me during my recovery from manic depression but, I told them, I’d only need it for three months. It wouldn’t be a “forever” thing.

At first I was told all about the hardships I’ve caused the family. Then I was told I would be given a cheque, signed to my landlord, for $350 to cover any outstanding bills I might have. When I told them my bills were covered, and I only needed what I asked for, I was told they would cover my rent, of $384, again by cheque to my landlord.

The next offer was to take me shopping, where they would pay for my groceries. In a truly bizarre revelation I realized they absolutely refused to trust me with cash. In the end, after telling them my rent was covered, I received gift certificates for $150 to a grocery store in the next town. It was made fairly clear that would be all I was going to receive.

So I used it to buy the amount and quality of food I thought necessary to move my blood sugar numbers downwards. And it worked. For two entire weeks my blood sugar fell from the mid-20’s to between eight and ten.

Then I ran out of decent food, and money, and getting to the store where the certificates were valid was impossible without a ride. And, surprise, the numbers have gone back up to the mid-teen’s.

There is a pattern in there. For the first ten or eleven years after I was diagnosed with manic depression I was left on my own. I survived on welfare, and living in rooming houses and, after being lectured, could look forward to finding $20 in my bank account sporadically. On my $4 per day income there were also occasional bailouts, for bills and rent.

After relying on the occasional handouts for almost fifteen years, the $200 allowance was my idea — because I was tired of being lectured to about financial hardships. The real problem was my waiting until I was desperate before asking, so a set amount every week, I thought, made more sense. And there was peace.

But my family still offers me cake at birthdays. Years after being diagnosed as a diabetic, they still offer me chocolate and pop. Just like, years after I was diagnosed with manic depression, they would scream at me to get out of bed, or tell me their lives would be easier if I just got a job. My youngest brother calls me a “schizophrenic”, in a mean and nasty tone, when he’s talking to the people he works with.

There are intelligent people. Stupid is fairly rare in my family.

It was my decision to move to my home village almost eight years ago now. It’s cheaper to live here than in Toronto, it’s closer to the psychiatrist who originally diagnosed me, and closer to my support system. It wasn’t my family’s idea. There were no offers of “hey, why not come back here where it’s safe and get this recovery thing started”.

When I broke my foot, I emailed my mother and told her I was going to be changing my diet, so I could get my numbers down. And she told me “it’s about time” (close). As if she had been offering me help all along, and I had been doing something wrong, or that she knew my numbers were horrible all along and was just watching me deteriorate.

It was like she was exasperated with me for not getting started sooner, yet never offered to help. Or something weird like that.

There are times when I just want to yell at these people… “I have almost no feeling left below my knees, you fucking idiots”. And it reminds me of the same urges I’ve had when dealing with their reactions to the manic depression and subsequent poverty issues.

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…anyway. My girlfriend is dropping our son off just before the sun rises, and I’m taking him to the park later so I need some sleep, which means I haven’t edited this thing. I think it makes sense.

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...thanks.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Diabetes, Disability, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Poverty | Tagged | 9 Comments

Monitoring my broken screen…

Hi. My computer monitor died last week. The screen goes black a minute or two after being turned on, then stays black until I flip it off and on.

I’ve borrowed my girlfriend’s monitor, but it’s old and decrepit and pretty much ready to disintegrate. Basically the contrast is permanently set to ‘burnt out’, so staring at it for more than a minute is like staring into the sun. Actually it’s kind of like “Pitch Black”, the Vin Diesel movie where everything is just bleached out.

I can barely see what I’m typing right now, and this is black font on white background. The worst thing, however, are the photos. I have a lot of photos from the past couple of weeks, and I have no idea of their quality. That drives me freaking nuts.

I’ve found a decent yet cheap monitor at our local Staples, so now I just have to wait until I have the cash.

Until then I’ll be taking a little break from Salted. I have picked up my notebook again, and I have a decent pen, so I am still writing about this stuff.

Thanks for offering me whatever patience you have left.

Posted in Health | 6 Comments

My son can walk

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My son can walk, and he’s pretty good, so it must must come from his mom, because I’ve got about three different limps.

It’s incredible to watch as he confidently throws a leg out, his thigh parallel to the ground like he was marching, then his leg shakes a little on the way down and finally he quickly stomps on the ground.

Walking makes him happy, and he’s already started to play the “get away from his parents” game. Thankfully, for the moment, he can only walk for so long.

He has taken short steps before, just about a month ago he taught himself how to appear to be walking while actually falling to the floor with less urgency than normal.

Then, on Friday, April 22, my girlfriend brought him into my apartment and said “watch this”, and she stood our sixteen month-old son up, and he took off for my kitchen chair. He walked five feet, then turned around and laughed at us.

We spent the rest of the weekend trying to get him to do it for the camera, but that didn’t work.

We finally managed to capture the moment a couple of days later. So… here you go:

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...thanks.

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Posted in Clinical Depression, crazy people with no pants, Father, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | Tagged | 10 Comments

Happy Zombie Day

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So… dumb question, but when did Easter become a really lazy version of Halloween?

Saturday night my girlfriend laid out a truckload of chocolate and toys on the kitchen table. Sunday morning her oldest son came back from his scheduled weekend with his father for a quick visit, scarfed down a few handfuls of Jelly Beans, cracked open some toys, including a remote-control car, and gave us all Happy Easter hugs.

Even my seventeen-month old son bit the head off a tiny chocolate bunny and laughed himself stupid.

Personally, when I was a kid, I never liked the chocolate I received. It always tasted like the stuff you cook with, and the clothes were always bright, primary colours. I can’t remember a time when there was an egg hunt.

Mostly Easter was a multiple course dinner where everyone showed up wearing their cleanest clothes.

But my girlfriend’s family take it pretty seriously, with meals and egg hunts and dump trucks full of chocolate. But, for them, it’s a secular celebration. Like an even more family-friendly version of Halloween.

Which is fine, Easter has never meant much to me either. At least it never meant anything religious. Most of my family will attend church services on Christmas and Easter, but it’s only a few of them who attend church regularly.

I was hyper-tired Sunday morning, so while my girlfriend took the boys to visit with her parents, I walked home for a long nap. There are a lot of churches in my small village, and I walked past three of them to get back to my home. Each of them was either preparing for the noon mass, or the early mass was gathered on the sidewalk talking about weather or the latest Christian gossip.

The vast majority were over fifty-years old, and a lot of the women were wearing Easter hats.

Maybe this year feels different because I’m not taking part in any of my family traditions… such as they are. My step-father and mother took my girlfriend, son and myself out for fast food on Friday after my appointment with my psychiatrist. The rest of the family got together for dinner on Sunday.

Maybe it’s because I’ve never taken the holiday seriously, as it seems to be entirely dedicated to the idea someone can come back from the dead, plus bunnies, colourful ribbons and chocolate.

Personally I think Easter is turning, if it hasn’t already, into a long weekend combination of St. Valentine’s Day and Halloween.

…whether you’re into it for the miraculous return of the son of your God from a three day dirt nap, or little chocolate cups filled with peanut butter, Happy Zombie Day to us all.

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...thanks.

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Posted in Clinical Depression, crazy people with no pants, Health, Humor, Humour, Living With Depression, Living With Manic Depression, Mental Health, No Post Day, Zombies | Tagged | 3 Comments