Days from his ninetieth birthday my grandfather has to start all over again

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We’re celebrating my grandfather’s ninetieth birthday this week. I’m having a hard time believing we’ll be doing it for ninety-one next year.

There was a fire recently that left him and my grandmother homeless. At the moment the most likely cause was a lightning strike that started a small, but very smokey, fire on the third floor of their retirement home. Two of their friends, a couple, died trying to escape.

My grandmother, who was making my grandfather a late night sandwich when the fire alarm went off, got out with just her nightgown. My grandfather has been down on himself for not stopping to grab something on the way out.

But there was no time. A few days before the fire there had been a fire drill. So, when the alarm went off for real, the staff ran door to door, making sure everyone knew it was the real thing. So, with the alarm going off, and a staff member yelling at them to get out, my grandparents didn’t have a lot of time to think.

In the rush to get out my grandfather also hurt his thigh, we’re not sure yet, but it sounds like a pinched nerve. At first everyone was forced to wait outside in the cold and rain, and then they spent a few hours on a school bus watching their home get destroyed.

They spent the first two nights with my uncle, the washroom in my mother’s home is on the second floor, and my grandfather can’t do stairs anymore. My grandmother can get along okay, but up and down a staircase every thirty minutes would have been too much.

My mother found them a room in a retirement home here in my village, but it’s about the size of a modern jail cell.

I’ve been visiting them every day, not for long, but long enough to see that my grandfather is suffering. He can barely walk now, he needs help showering, he’s using a walker for the first time and, to get to and from his meals, he’s using a wheelchair.

I was able to get into the damaged retirement home, to get some of their things, including a pocket-sized cross that has been in the family for 200 years. When I brought it to him tonight he was laid out in his bed, his pant legs pulled up, exposing bruises upon bruises, each one darker than the last. His arms and hands were almost entirely black from bruises, all caused by blood thinners and falls.

He fell three times on Tuesday, and two more times on Wednesday. Tonight his face was grey, his voice was hoarse, and he couldn’t raise his head from the pillow. He did perk up when I handed him the cross.

It’s as though, since the fire, he has aged ten years.

Ninety-years old is a strange time to be starting over from nothing. Or almost nothing. But for my grandfather it’s not about the things he has lost. He finally had his flat screen TV, with a DVD player and sound system. He had his special chair from Veteran’s Affairs, with its remote control and lift action. And he had his computer.

For someone who spent a lifetime doing the things he did — travelling the world working as an engineer on hydroelectric dams and mega-projects — it’s not really that much. He’s always been a purger. He used to keep intricate notebooks, at the end of every day he would write about the weather, what he had done, who he had seen, memories of conversations, drawings, designs for equipment, but he only kept them for so long.

When my mother found out he had been burning them she, being an archivist, freaked. So, instead of having sixty or more years worth of his notebooks, we only have a few years worth. Because, to my engineer grandfather, the notebooks were taking up too much space.

He has some photos of the projects he worked on — including Churchill Falls and Rogers Pass. But that’s it.

What my grandfather lost in the fire was his independence, and his community. It was just last year when my grandfather finally put his foot down and insisted he and my grandmother get separate rooms. Getting his own space gave him back several years, he was younger, he could walk when he wanted to, watch his shows, and avoid having to listen to the constant passive aggressive nagging machine that is my grandmother.

My grandfather has always been a big man. He grew up dirt poor in the middle of seven kids. He was tall and strong and was a star hockey player. Before age started to bend him he was over six-feet tall, and always a healthy 200lbs. While he worked as an engineer he also had a hobby farm where he raised beef cattle, and designed and built his own tools.

Now, I’d be surprised if he was more than 130lbs. But he was the same weight three weeks ago, and he was healthy. He looked healthy. He was slow, and shaky without his cane, but he was able to push on. To get where he wanted to go.

But now, trapped in that little room, he has nowhere to go. His leg hurts too much to walk far, he has to contend with the great black hole of despair that is my grandmother, constantly pushing him. Being a constant negative presence.

It’s the community that the misses. He has the means to buy new stuff. But what he misses are the people, the staff, the women he used to flirt with. Having a place to go, to escape to, when it got too noisy. Having plans. He loves having plans. He carries a little leather black book, the same book for as long as I’ve known him, he just changes the date book insert. In it he plans his week, his month and even his year.

Last year he played more than thirty rounds of golf with a group of engineers and doctors from the area. The year before he played more than fifty. So far this year he hasn’t played one, and he probably won’t play again.

Before the fire he played bridge two or three times a week. But now his group are scattered all across Ontario.

He has lost touch with the couple he shared his meals with, three times everyday, for six years.

And now, when he has people over, my grandmother directs the conversation. She interrupts him, which he hates, and asks him to repeat himself until he finally shuts down.

My grandfather and I became close when we were both living in Ottawa in the last part of the 90’s. I was taking the journalism program at Algonquin College, and somehow I became his computer expert. But he taught me how to drive his tractor when I was nine.

Being close to him, when I was a child, was as close to a father as I would get. It wasn’t much, we only saw each other for a few weeks in the summer on his farm, and again at Christmas. But it was everything to me at the time.

When I moved back to my home village, in 2003-ish, he moved from Ottawa to the next town over from my village, to the retirement home. And we’ve been having regular lunch dates ever since. Mostly we talk politics, hockey when it’s in season, and family stuff.

For the past two-and-a-half years we spend a lot of time talking about my son, who I named after my grandfather. I take as many photos as possible of the two of them together.

We’ve rented* a beautiful bed & breakfast for his birthday party tomorrow (Thursday) night, and most of the family will be there. My brother, his wife and their son can’t be there, but most of his other grandkids will be — I think one of my cousins is working in Yellowknife. Plus his golf buddies, and some of his more mobile friends from the retirement home.

It should be a large, loud gathering. I really would like to do it again next year.

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*My parents and my uncle have rented the B&B, we’re just showing up with smiles and a card.

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...thanks.

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Posted in Bud, Clinical Depression, crazy people with no pants, Depression, Granny, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | Tagged , , | 11 Comments

Hearing for the first time what I missed for four months

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For the first time since January 24, 2012, I can hear out of both ears. It’s not perfect, but it’s really, really close.

On January 25 I lost my hearing due to an infection. At its worst I had no hearing in my left ear, and half in my right. Every time my ears started to clear, I would get painful coughing fits and the pressure would build in my ears again.

But now it has been a week since they cleared and I’m just starting to realize what I’ve missed. I can hear my baby burble in his sleep. I can hear the baby birds in their nest above my balcony. I can hear the rain, the wind, the toilet running, the late night traffic outside my window. I can hear the shutter click on my camera.

I feel lighter. I’m relaxed, calm, I can take part in conversations. There’s no more effort to hear, to listen.

It has been almost four months since I’ve been able to hear, and almost every doctor told me it might be another year until things righted themselves. I’m taking medication to deal with my blood pressure, which spiked dangerously high because I was having panic attacks at night from feeling claustrophobic.

The only sounds I could hear at night, for four months, were my heart beat and the kind of electric hum you might hear standing under a transformer.

A monotonous and wet thump-thump. thump-thump. thump-thump. thump-thump. and the high pitched whine you get in your head after a long, loud concert.

It took four months of fighting to be taken seriously by ER doctors and my family doctor, but I finally got in to see an ear, nose and throat specialist four weeks ago. He agreed it was serious, my left ear was almost entirely blocked, my right ear had mostly cleared by then.

But he agreed to perform a somewhat minor procedure that would put a ring, or a loop, in my left eardrum. This would equalize the pressure and allow my ear, or ears, to drain. After a few months, maybe a year, the ring — smaller than a match head — would fall out as the eardrum healed.

We set an appointment for day surgery for May 24. On the car ride home it feels like ten tonnes has been lifted from my shoulders. Finally, finally, finally it would be over.

But when I woke up the morning of the surgery it felt like something was wrong. The kind of wrong where you get to work and realize your shoes are on the wrong foot.

My girlfriend was very excited about my getting my hearing back, and on the car ride to the surgery she kept asking me questions about the procedure, and how long it would take to get my hearing back afterwards. And, honestly, I had no idea because I had been so excited to be taken seriously by the ENT doctor I forgot to ask him any questions.

So finally I said, “stop, look, there’s something wrong. I don’t know what, but I feel weird and I just need everything to be quiet for a few minutes.”

When I was finally on the operating table, and they had applied anaesthetic to my throat so they could check the passageways for infection, it finally dawned on me what was wrong. And I swore, out loud. “Fuck… unbelievable.”

The doctor’s assistant asked me what was wrong.

I put my hand to my forehead, closed my eyes and said, “Jesus. Unbelievable. I can hear.”

They checked, and the left ear, the one which had been mostly or entirely blocked for months, was as clear as if nothing had ever happened.

At some point during the twenty-four hours before the scheduled surgery, the last of the fluid blocking my ears had drained away.

The doctor told me that if anything goes wrong in the next three months he’ll see me right away, without a referral. There’s still some creaking, and light popping, but I can hear.

My life is stupid.

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...thanks.

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Posted in Bipolar, Clinical Depression, crazy people with no pants, Depression, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | Tagged | 9 Comments

Fixing the things that have been broken

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Tomorrow afternoon* I will be in the hospital for a quick procedure which, I’ve been told, will allow me to hear properly again. Eventually.

I have some hearing in my left ear, but that’s like wetting the bottom of a glass and saying you have some water in your cup. My right ear is mostly open, but if normally I can hear the entire sound — 1 2 3 4 — with partial blockage I can only hear the mid-range, the 2 3 parts.

My ears have been both better and worse since January 25. I’m on blood pressure medication thanks to the panic attacks I was having when it first happened. I don’t have them anymore, and I don’t feel nearly as claustrophobic when I lay down to sleep at night.

But for the past two weeks my ears have been… not popping, but creaking whenever I yawn, drink, sometimes when I eat, when I move my jaw a certain way, and sometimes when I’m talking. It’s incredibly annoying, and kind of fun at the same time — like playing with a scab while you’re lost in thought.

Or cracking your knuckles.

For the past few weeks, because my hearing has been so bad in one ear and almost fine in the other, I’ve been hearing in mono. When the phone rings I’ll walk towards the sound, but then realize it’s coming from the other direction. Or when people speak to me I have to cock my head.

It’ll be nice if all of this is gone, finally, by Thursday evening.

The doctor will freeze my ear, make a tiny slice in my eardrum and insert… it’s not a tube, although in most cases it would be, it’s more like a ring, like one of those O-ring ear piercings the really, really cool kids have.

The ring stays in my eardrum for up to a year, earlier if the eardrum ‘heals’ it out.

The problem I have right now, is I don’t know how long it’ll be until I actually get my hearing back. I was so excited at having a doctor tell me there was a treatment, that I forgot to ask him about what happens afterwards.

I’ve been reading some comments and questions left by people who have had a similar procedure done, and some of them are concerning me. Like, apparently, my hearing might be muffled for a few days, possibly longer. I don’t like Dr. Google, he’s mostly an idiot, so I’m not too worried yet.

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What I am worried about is something massively stupid I did last week… I put the wrong insulin capsule into the wrong insulin pen, then I used it like the right insulin.

I take two types of insulin every day — at least I’m supposed to, the schedule has been broken for a month or two now. The first kind is Humalog, and I take it with my meals. The amount is determined by a blood test, but no more than 24 units per meal — ideally it’d be 0-2 units.

The other type is Lantus, which I take at bedtime. It’s a slow release formula that takes care of me through the night. When I’m ready for bed I take 100 units of Lantus.

Maybe you can see the problem already. For a week, every night at bedtime, I was taking 100 units of the Humalog — in addition to the Humalog I was taking at mealtime.

During the night I had severe leg, ankle, foot and toe cramps. I was desperately hungry after a few hours of sleep, I was walking into things, I felt like 10lbs of shit stuffed into a 5lb bag. Yet, for most of a week, I kept on overdosing, because I was just happy to be finally getting back into the fighting diabetes groove again**.

The two capsules are both the same size, but the Lantus has a purple tip with a thin purple stripe just off the tip, where the Humalog has a brown tip with a thick brown stripe around the end where the plunger enters.

I have no idea what the long term effects will be, or could be, from taking basically 250 units a day instead of a maximum of 72. Or the effects of taking 100 units, and then not eating. Especially since my kidney functions are already down to 37%. But, after checking with Dr. Google, I don’t think it’s going to be good.

So, since I realized my mistake, I’ve been back to the normal levels and things have gotten better. No more cramps, anyway.

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**I haven’t been paying much attention to my diabetic or bipolar recovery since Evangeline died. It sounds obvious, but because I wasn’t paying attention to me, or my patterns, I didn’t realize just how depressed I have been.

I stopped monitoring my blood sugar, since April I’ve been checking once or twice a week instead of three, four or five times a day. Even before my daughter passed away, back when my only real problem was my hearing, I had stopped being diligent about the testing.

But I had been taking the bipolar medications regularly. But, roughly two weeks ago, that stopped as well.

I ran out of the Wellbutrin, my purple pill, and instead of making every effort to get a refill from the pharmacy I can see from my living room window, the one I walk past almost every day, I let it slide. Until a few days ago, when it became apparent to me, through my girlfriend’s growing uneasiness, that I was not right.

I had become withdrawn, unwilling to step outside, I was snapping at her, I was depressed and uncommunicative beyond the point of rudeness. At times it was like I wanted to talk to her, but just absolutely could not.

I think, by stopping the Wellbutrin, I let the depression I’ve been feeling for a long time — especially since Evangeline — have some time to play out.

But it’s just too destructive. I’ve been back on the purple pill since… Saturday-ish, and I feel much better. Much safer, and much more capable of dealing with the depression, and its causes.

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Because of how I was feeling we haven’t been able to order the monument yet. Depending on how the ear thing goes tomorrow (today) we’ll do it in the afternoon.

We have planted flowers over Evangeline’s grave, some annuals and some perennials. And we made sure to lay down three large bags of top soil before we did, so there’s some definition to the site and it doesn’t just look like a deserted inner city patch of dust. Which is nice.

I have deposited all of the cheques, money orders and PayPal things I’ve received. And I believe we’ve received more than we initially needed. We were asking friends, family and blogging people for a total of $450, and (I think) we’ve received almost $550… to be honest, I only received $50 from family, and nada from my offline friends. So, really, it was all you.

So thank you, and you will receive a photo either by email or snail mail.

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*But really, by the time I post this, it’ll be happening later this afternoon.

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...thanks.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Diabetes, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health | Tagged | 4 Comments

How I ended up being one of the first Internet users in Canada; why I owned a pirate shirt and a photo of my mohawk

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When I was twenty-two I owned, and proudly wore, a burgundy coloured pirate shirt. It had puffy sleeves, a long v-neck with laces, and — if I let it — it hung to my knees.

It was awesome. I had a crazed wardrobe back then. There was a store in The Rideau Centre — the downtown-Ottawa mall — that sold patterned silk dress shirts imported from Lebanon. I think it was 3 for $12. They lasted a week or two, but then the collar or the cuffs, or anywhere they was a button, would start to roll up until there was nothing you could do to keep your belly from showing.

I tried washing one and the sleeves, just the sleeves, shrank, so the cuffs were halfway to my elbows.

And the colour schemes were just nuts. I can remember one that was fourteen different shades of brown in irregular circles, all roughly 2-inches in diameter. I only managed to get to the store a couple of times before it disappeared but, still, that was at least six shirts.

The thing was, every time I went out looking for clothes, I would have been just looking to buy a few black T-shirts. But, because I was on Social Assistance and my total income after rent was barely $120 / month, I’d get to the mall and panic… I only had X-amount of bucks, so I’d convince myself I should get the best deal in that moment. Which was generally 3 of whatever for less than $15.

I’d walk around the Rideau Centre for an hour or two, comparing every deal against every other deal.

Which makes the purchase of the pirate shirt all the more weird. At the time I was living near the Russian embassy in the huge basement apartment of an old ten-storey building with a childhood friend and a gajillion cockroaches.

My friend, lets call him “Jay”, was a multiple cultural pioneer. We both worked at the University of Ottawa community radio station — I worked as a producer for their drive show, and he had a weekly four-hour show featuring all that was new in Industrial Music. Stuff like KMFDM, Ministry, Lords of Acid, Nine Inch Nails, Vampire Rodents, My Life With The Thrill Kill Cult… basically anything with a mouse-heart-on-meth back beat [all YouTube links are SFW].

Jay and his parents had also been involved with computers since the early-1980’s, mostly through a popular software and gaming store, but really mostly because they were some of the original gaming software pirates. If you lived in Ontario or Quebec during the 80’s, and played a hacked version of a PC, Vic20 or C64 game, you were probably playing their product.

So it made sense Jay would also be one of the very first people in Canada to have a modem.

Ottawa was the first city outside the US to get hooked up to the Internet and, weirdly enough, our basement became one of the first residences in Canada to get hooked up to the National Capital FreeNet, which was run out of Carelton University. We had online access the first or second month the service was available in Canada.

that's right...

So… I was one of the first people on Earth to get to see Internet porn. Of course, it took fifteen minutes to download a single photo so, really, it was pretty useless. But you could definitely see future applications for the technology after the fifteen minutes were up.

This was also about the time when I cut my hair into a ginormous mohawk — which I doubt I’d have had the nuts to do if I hadn’t been living with Jase, who mostly had black dreadlocks since the nineties started.

I never coloured it, but my mohawk was roughly eight inches long and four inches wide. Which was nuts because I was dating a Jehovah’s Witness escapee at the time, and the craziest thing I remember her wearing were the friendship bracelets she made. She even wore the band T-shirts I bought her tucked into her pleated shorts.

Thankfully she stayed with me during this period because I did love her, and she was spectacularly hot. Also thankfully her father never pulled a gun on me, despite me showing up for Sunday dinner over and over again wearing a pirate shirt and a massive shaggy mohawk.

Jay was also a revolutionary in the field of body piercings and pirate shirts, in that on the day he had his nipples pierced he bought a black pirate shirt so they wouldn’t chafe — later on he was also a pioneer in wearing skirts because of multiple genital piercings.

Which, thank God, I never did. But I did find out where he bought his pirate shirt, and I did head downtown immediately to get one of my own. It was surprisingly cheap, but I think I would have bought one regardless. I almost bought a black one, but then we’d be some kind of weird team of bad-hair industrial pirate punks.

Which we kind of were.

…anyway, I just wanted to write something non-grave related, and this is what popped into my head.

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…Jase and I split up after six months. We still owe the landlord two months rent, which we refused to pay because he wasn’t taking the cockroach situation seriously. I was killing sixty of them every night before turning off the lights and going to bed. After a while Jay stopped cleaning the roach carcasses off his wall, he was leaving them there “as a warning to the others”. It didn’t work.

I spent the next few years trying to clean myself up, mostly in an attempt to keep my girlfriend from dumping me. I cut my hair, tried to find non-print shirts to wear, I found non-roach infested apartments. Didn’t work, I was just always too bipolar for her.

Meanwhile, Jay went on to rewrite the rule books of one of the most popular roleplaying games of all time. He ended up publishing about a dozen books through them. He was also one of the original hackers. He got into a lot of trouble a few years ago for doing something stupid, so now he’s banned from the Internet.

My pirate shirt survived another eight years. But, as I was moving out of a shared apartment, my idiot roommate mistook a garbage bag full of clean clothes for actual garbage, and tossed it out.

The girl I was in love with back in 1992 dumped me eighteen months later, when I had a relatively normal haircut. She contacted me through Facebook two years ago to apologize. She has a little girl who looks just like her mom, and a husband who looks a lot like me.

I don’t know what happened to the cockroaches, but I assume they’ve turned Jay into a cautionary tale for their kids.

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...thanks.

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Posted in Clinical Depression, crazy people with no pants, Entertainment, Health, Humor, Humour, Living With Depression, Living With Manic Depression, Mental Health, No Post Day | 6 Comments

Thank you.

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…hi. I accidentally published this post before I had even started it. Whoops. My apologies. So, this is the version that has words.

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Thank you, to everyone who offered to help with the cost of our daughter’s gravestone. We received enough so we can put a down payment on the stone, so we’ll be ordering it this week.

Which means I’ll be sending out photos this week as well.

It took a while, but I did respond to everyone who sent an email, there might have been a few of my responses that went into people’s spam folders, so if you haven’t heard from me, it’s in there, and if it’s not, let me know.

If you haven’t had a chance to send a cheque or money order yet, there’s no rush, but it’d be great if you could let me know the amount you’re thinking of sending so we can budget. But it’s not a big deal. Especially if you just don’t have the money available you thought you would.

And I finally set up a PayPal account, but I have no idea how to use it… but, I’m willing to give it a shot.

We also have a plan to spruce up Evangeline’s plot. We’re in the newest of the new section, which is sandy, rocky and pretty barren. So we’re taking some of the top soil we were going to use for a flower garden at my girlfriend’s place, and plant some wild flowers and grasses around the plot.

We did have a small rose bush in a hanging pot, but the cold snap we had last week killed that off. We’ve been leaving flowers on the grave, but we’d really like to do more. There really is nothing there at the moment.

I’m still not sure what improvements we’re allowed to do, within the cemetery rules, but the only thing anyone seems to do there is cut the grass.

There are two cemeteries separated by a two-lane country highway, one has full trees, lots of places to sit, straight rows, and shade.

The one we’re in has no trees, no places to sit and the rows are kind of haphazard in places. Which one you get buried in, believe it or not, depends mostly on language. We’re in the French-Catholic cemetery, the one across the road is English-Protestant.

So… I just wanted to thank everyone. Thank you. The stone should be ready by the end of the month. Right now our plan is to leave a note of some kind under the stone with the names of the people who helped with the cost.

Which is cheaper than tattoos.

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...thanks.

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Posted in Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Poverty, Pregnancy | Tagged | 9 Comments

We need help.

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We can’t afford to buy Evangeline a headstone. Not any time soon, anyway.

We priced stones last week and the second smallest costs $900. It’s a flat stone measuring 24″x12″x4″, it’ll have her full name, her birth date and a short quote. They’re kicking in a rose etching for free — Rose was her middle name. The only one smaller wouldn’t have room for her full name, and costs $600.

So… I’m asking for your help. At the moment, and for the foreseeable future, we can afford half the total cost. So I’m asking everyone I know if they / you can afford to donate between $25 and $100 to the cost of the stone.

In return for whatever you can donate I’m offering copies of my photos for your wall. I guess, basically, I’m selling photos and the money I receive will go towards the cost of Evangeline’s gravestone.

I know things are tight every where, so if you can’t, you can’t. I know we can’t. But if you can, any amount would help.

For what it’s worth, if there’s any extra money, it will be going to the Children’s Hospital of Eastern Ontario (CHEO) Special Occasion Fund. CHEO is the hospital Evangeline would have spent the first few months of her life had she survived.

In order for this to work there is the small problem of addresses. I’m in the process of getting a PayPal account, it should be set up by early next week.

But, if you’re down for helping out, I’d be willing to exchange my address for a cheque or money order.

Just send me an email and we can set it all up. Thank you, from all of us.

contact

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Some of the photos I’m selling…

...thanks.

...thanks.

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...thanks.

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Posted in Bipolar, Bipolar Disease, Bipolar Disorder, Clinical Depression, crazy people with no pants, Health, Living With Depression, Living With Manic Depression, Manic Depression, Mental Health, Poverty | Tagged , | 20 Comments